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Thursday, 13 December 2012

Phew! Another Apointment over!

Sorry for the delay in posting! Our appointment was this morning, and we are just getting settled back in at home! We had another fantastic stay at RMH. Linda, and all the staff and volunteers really outdid themselves again, as always! They really know how to make you feel at home, even though you are away from home :) They even surprised my husband with a copy of the picture of Ronald McDonald House Atlantic Canada that he drew for a fund raiser in the fall. They had it framed for him, and they all signed the back of it for him too :) so nice! They also showed us when we got there, that they had the original framed and hung in the kitchen by the fridge! :) So great to see his work on their walls again! I am very proud of his work, and it is nice to see that others appreciate it too! This is the picture that he drew for them for the fund raiser, and also another that he drew and donated for them to put up as decor for in the house:

Our appointment went great for the most part today. We got GOOD news! So I was just going crazy for no reason with worry! Such a typical mommy I can be! Dr. Logan said Lilybear's feet look great! We also had some x-rays done of her hips too, as she was turning her foot out for a while when she first started to walk and Dr. Logan wanted to take some just to make sure everything was fine, and it was! Phew! Then Peanut had a melt down as her DS was taken away because she dropped it on the floor three times. Lilybear's fabulous RN Jen saved the day there by hooking Peanut up with some awesome Disney Princess stickers! Thank you Jen! :) Then Lilybear went into total melt down mode when the Active Motion Rep Trevor was trying measure her feet for her new set of boots as she needs to go up a size. He felt so bad, and I felt bad for him. Man my girl can put up a fight when she gets pissed! haha! It totally didn't help that it was past nap time, she missed lunch, and had been up at 3:30 am today! bad combination for trying to hold a toddler still for measurements! We finally got it done with a lot of tears on Lilybears part, and then we were on our way back home again!

Our next appointment will be in 6 months time. Dr. Logan is hopeful to have a clinic here by that time, but they let us know today that if it isn't Dr. Logan coming over that we will have the option of setting up her appointment at the IWK instead! They are so great! :) Always looking out for their patients! I think they might know that we are a little wary of taking Lilybear back to our hospital here after her whole ordeal back when she was first treated. :)

Well this will probably be my last post before Christmas. I'll be sure to post some photo's of Lilybear from Christmas once I get the chance! Merry Christmas to you all, and as always, Thanks for reading! :)

Wednesday, 5 December 2012

Next appointment is coming!

So one week from now, We'll be all settled in at RMH (Ronald McDonald House), and catching up with those we've met there. I have to say that I am both excited and nervous about our appointment next week. Let me break down my feelings a bit, and maybe it will help me understand it a little better, and give you some insight as well.

I feel excited to go back, as we haven't been to an appointment in over 6 months! That's right guys! It's been 6 months. . . I can't even believe it myself! I looked through some photos tonight of just how far my baby girl has come! This time last year she was full time in a brace after her first tendonotomy. She has come so far! If you haven't read our full journey, please do. It's been one heck of a ride! She is now running around with her big sis and friends. It's hard to make her stay still most of the time. Every night and nap time when we put on her boots she helps by putting her feet in for me! Such a change from those first few days when she fought with all she had to not let me put them on. Peanut even helps too sometimes. Her job is to snap the bar on :) She does a wonderful job, and likes to be involved in the process. She always asks me if she wore boots like Lilybear as a baby, and thinks it's strange when I tell her no, and that not all kids have to wear boots to sleep. I explained to her just the other day that when most babies are born, their feet aren't straight so we have to use the casts and the boots to help them be nice and straight for when those babies are ready to walk. She looked at me and said "So that means Lily is special right?" She sure is! :) So I am excited to catch up, and excited to see the Orthopedic team see her now! They are in for a treat!

I am  nervous, and at moment terrified that we'll get bad news. . . There is no real logic to this, but I'm a mommy and that fear is just there. I don't think there is anything wrong with her cute chubby feet. But I'm not the professional. I have been having stressful dreams some nights that wake me up. They are kind of flash backs to Lilybears relapse, and how heart breaking it was to me at the time. I felt like I had failed her in some way. I know now that I didn't, and that relapses can happen, but I think there must be some guilt still lurking in my subconscious. I see her running around, and I think to myself that she is doing great, and we'll get all good reviews. . . but then little things start to pop into the back of my mind. Like how her foot was turning out a bit when she was learning how to walk. She doesn't seem to do it anymore, but maybe i just don't see it? Or memories about how I didn't know her Left foot had relapse before. Or other times, if I'm holding her in my lap, and I look at her feet, and I see her holding her foot a little crooked or at an odd angle for a second. Did I really see that or are my eyes playing tricks. I'll ask other people around like my mom or husband and they don't see it. Sometimes I just feel like I'm going out of my mind. So I'm terrified. . . I wish I wasn't, but I am.

So those are some of the thoughts running through my head tonight. One more week, and I'll know. Then I'm sure this will start all over again in another 6 months :) Oh dear. . . :)

I'll leave on a happy note though. Here are a couple of photos of my Lilybear now!

As you can see. . . It's hard to get her to stay still for very long! Cheers, and You'll hear more from me Next week!